Avarie came home on Friday from the hospital. We don't have any results back yet on anything, but since her fevers stopped and she was stable they let her go home. We are having a good, but busy time home together. We have a really busy week coming up. Tomorrow we start all of our testing and procedures at Doernbecher. Avarie has surgery tomorrow. She is having her port (Buddy) removed. She is having a new type of Buddy put in. The new one is called a Hickman (not sure I spelled that right, but thats how its said). She is also having the nodule on her leg biopsied. It will be a longer surgery then we're use to and a long day for us all. She will not stay overnight, it is only a day procedure. We will have Tuesday off to recover and then a busy day Wednesday back up at Doernbecher and again on Thursday to both Doernbecher and Emanuel and then Friday back to Emanuel for her going away party there. It's going to be a long week, but it will be a week of a lot of answers hopefully. Thursday is the day that we meet with the transplant Dr. Nemecheck. We will plan which type of transplant she will have and set an official transplant check in date.
I'll try to repost tomorrow with update on how her surgery went and if we have any answers back yet from her kidney biopsy and bone marrow biopsy. This is the first bone marrow biopsy I have been nervous about since she hit remission. We haven't had the chemo we should have been having over the last two months and that makes me nervous. I will sleep a lot better once those results come in.
Sunday, May 31, 2009
Busy Week ahead of Us
Posted by Jenell at 5:42 PM
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8 comments:
God Bless You all! You know you are always in my heart and prayers! I will be checking for updates! Love, Faye
Bless your hearts! Avarie is such a trooper. She has got such a beautiful spirit and God definitely still needs her here on earth. Sometimes it's hard to know why God gives us the challenges that he give us. It's always for our benefit though. I look up to her in ways that I can't explain. She is my HERO!
Our thoughts and prayers continue to be with you. We hope your week goes well.
We will keep our fingers crossed that everything comes back good:) Connor misses Carter! He wants me to say hi to Carter for him!!
~Carrie
Continual prayers on your family’s behalf. Praying all goes well this week! You are all so very amazing, your example, and faith has truly blessed me.
What a big week. You'll be in our prayers and thoughts the whole way through! I'm here if you need anything at all!
I'm keeping you in my prayer and hoping for you! Have a good day. Love you!
Hello Avarie,
this is Cinderella! i just wanted to let you know that i had a great time at your party and that i hope you get better soon!
You are such an amazing girl Avarie and i was so happy to meet you and play with you today!
Get well soon
Love Cinderella!
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