Sunday, May 3, 2009

Mt. Dew

We are all moved, now its just the getting settled. Thank you so much to all the elders on both ends who showed up to help move us and to the sisters in Battle Ground Ward who came and helped me pack. I am still amazed at how much people are willing to help and I'm starting to be able to accept the help a little better.
Avarie has been doing well this week. All of her testing came back good. They found nothing to be concerned with, her gut is just working slowly. So we are just pushing our way through the vomitting slowly. She started chemo on Friday and now we are pumping her with fluids to try to flush the chemo out. Because of the fluid flushing we can't give her her TPN. TPN is her IV food. It would be too much fluids going in to her body to do both, so we are hoping she passes the High Dose Methetrexate (chemo) fast. We always joke that the methetrexate is a giant bag of Mt. Dew, it totally looks like it and when I say giant bag I mean giant. I'm not sure how many liters it is, but I think probably around 4, that is two 2-liter bottles of Mt. Dew. It drips in over 24 hours and then we hydrate until it passes through her body. It usually takes on average about 3 days of hydration for Avarie. Thats an average, she's gone much longer then that and then one time went faster. We just never know.
We are still planning on starting rehab this week, but the Physical Therapists are nervous that she is still needing hydration, so Monday will probably still be a really light day. Then to top it all off, Avarie got a fever last night 102.1. At first I was really upset and then I remembered that we were staying here anyway, so it didn't really change anything. So far she has no symptoms pointing to why she might have a fever, so I am hoping it is just chemo related. It has been almost a month since our last chemo, which in chemo time that is a really long time, almost too long. It was really important that we got it restarted this weekend. So I'm not sure what to make of the fever yet, I'll keep you updated.

2 comments:

Faye said...

Hey there,MY sweet girls!So glad to hear some good news.You have been in my heart and prayers all week.Hang in there.I know that is eaiser said than done,But i know there is light at the end of the tunnel!I am sending you lots of hugs!LOVE YOU ALL!Blessings, Faye

j and k said...

I heard you were getting moved in yesterday. We wanted to help, but also didn't want to expose you to the bug we've had around our house, so I'm sorry we couldn't be there. I'm glad to hear Avarie has had a better week and I hope all things go well with her fever, physical therapy, and all. We've been thinking about you guys so much and I hope everyone is adjusting to the move alright! We're so close-if you need ANYTHING at all!