A scary night and day

I will do my best to post as much information as possible about the current events at the hospital. I (dad) was with Avarie yesterday and all night. Her stomach pain became worse and worse. She was in constant tears and eventually we had to give her phentynal every hour to simply dull some of the pain. When we knew she had the enlarged colon we had to put her on the monitor hook up where her vitals are checked constantly to make sure there are no dangerous changes that could signal a perforation in the bowls. This made her very uncomfortable and did not help ease my deep concerns that something was very wrong with her. I was finally able to go to sleep around 4:30 in the morning and was woken up around 8 for an x-ray. She was still in constant pain and it was very hard to watch her suffer so much. we fell asleep until about 11:00 when nurses came in and where giving her a bunch of antbiotics and other medications. She had just gotten some pain medication around 11:30 and it was doing nothing to ease her suffering so we gave her some ativan in hpes it would calm her and ease her stomach. When the nurse took her blood pressure it was at an unacceptably low level. Then doctor after doctor with in minutes of each other came in poking and proding her trying to find out for themselves what to make of the situation. I was awnsering question after question wondering what was going on as doctors and specialists filled the room and lined the hallway. I knew it was not a good thing to have so many professionals in one place at one time. Finally they said we needed to get Avarie to the NICU as soon as possible as the main floor was not able to deal with such delicate situations. Avarie was not going to let me leave her side but they needed me to vacte the bed. I tried to stay as close to her as possible as we went down the halls but the urgency with which they where moving made it nearly impossible for me to hold her hand and comfort her as she likes and especially in a scary time like this. We where hurried into an open room and the flood of doctors and specialist, nurses and finally surgeons was almost to much to bear. They where in a frantic mode trying to get Avarie the different meds she would need to help with her blood pressure and heart rate. They also concluded they needed to give her platelets and blood. The ensuing minutes where chaotic. Also they said they needed to put a third IV into Avarie. This is her worst fear and I knew it needed to be done but her little veins are so hard to access it takes several minutes of poking and maneuvering the needle to get the vein the way they need to access it. She was as brave as she cold be she allways wants me to count as they do this. I hate counting beacause I have to start over so many times because it take so stinking long. It was finally in. I was trying to reach Jenell all the while and she had just left my moms after picking up Saywer. She would come to the hospital with no idea wht was going on. When she arrived I could see the tears welling in her eyes. It was so chaotic and the doctors tried there best to quell our anxietys. The surgeon that talked talked to us and I truly dont remember what he said only that surgery was a rare occurance. I left with the baby to go pick up the other kids. I got home and called Jenell she said the CAT scan they did showed no holes but the bowels where even larger than before. And Avarie was now in septic shock. She said they whre about to put a cathater in and it was very possible they would have to remove the colon. I knew somthing was wrong. I just felt it in my bones. The way she would complain about her stomach and how even the morphine and other stomach helping meds had little or no effect was very concerning. I am very great full for doctor Galaresi who I belive was inspired to make the call for the cat scan and other tests. I am greatful for all of our doctors who share one common goal but have unique ways of confronting any given situation. I am very confused about little Avarie and her intense suffering she has had to go through in her tiny little life. What a sweet and special little angel she has been to all of us have been in her life. I wonder how long her little body can sustain such brutality. I know my will may not be the Lords will but it does little to ease the frustration I feel right now. I also know there is one who suffered more tha the greatest minds can ever comprehend and for him I am forever indebted to. I pray all will be made well and the outcome in this situation and as a whole will be what is best for sweet little Avarie. I am so greatful for all of you. Your thoughts and prayer your time and geneousitys. We are in need of it all and it is a wonderfull feeling to know you are surrounded by so many wonderful family and friends as all of you are to us. I ask for your prayers to be especially focused for Avarie and her family at this very difficult time. I love you all and apologize for not being a greater part of this blog. I am everypart consumed with my sweet daughter and her happiness. So please take care and God bless you with your needs.
Craig L. Giles