Yesterday went much better, Avarie did not get sick. When we first started the medicine her blood pressure went low and we had to track that a little closer then we normally would have, but it bounced back and she tolerated the medicines fine. Craig says she slept well, not that he did but its really hard to sleep at the hospital. At Emanuel we had been there so long we started to sleep pretty well, it will just take us some time to adjust to sleeping at Doernbecher. I don't know her counts yet, but the Dr's said that we will move forward with transplant even if she still has some counts. I am a little confused by this, but I think its maybe because those cells are dieing but then I don't understand why wouldn't the new cells that we're giving her die then too. I'm not sure about all of this, I need to ask some more questions from the Doc's. So I'll update that when I understand it. Otherwise things are going OK. Avarie is playing and in a pretty good mood. She was definitely excited to see Daddy yesterday and be able to play with him.
We got word finally on Craig's unemployment, it was denied. GRRRR! They said because he was let go because he had 5 absences in a 90 day period. Your only allowed 3, we already knew that that is what the company said when they let him go, but we missed those days because that was when Avarie first got really sick and we were in the hospital for over 2 months. When Craig had called in to work they had told him not to worry about it to take as much time as he needed, they were incredibly nice about it and made him feel OK about taking the time off. Then he injured his back twice and that is when they let him go. We know that is the real reason, which I understand his back was a liability, and that is why we wanted to move to a different position there that wouldn't require any lifting, but instead they just found a reason to get rid of him. His absences where in the first 90 days he was there, but that had expired by almost 2 months when they then let him go and he only had 1 absence during that time. There were no warnings, nothing from them. It just doesn't seem fair that a company can do that. So now because of the reason that they gave for his dismissal we now can't get unemployment and the Family Medical Leave Act doesn't apply because he would have had to have been there for over a year and he was hired the week Avarie was diagnosed. So Mallard Landing in Battle Ground Washington, Shame On YOU! That is the best I can do, now we just have to accept it and move on.
Tuesday, June 23, 2009
Day (-2) - Feeling Good
Posted by Jenell at 9:05 AM
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2 comments:
Dear Avarie & Family-I am so glad to hear you are feeling good and getting to play and have some fun. I just read that you are at Doernbecher and my sweet little friend Daisy will be back there on Thursday for her surgery too. Maybe at some point you two beautiful girls could meet! I told Daisy all about you and explained that you have different illnesses but that the treatment you have both been through is similar. You are in our hearts and on our minds! Kelly Knight
Geez! I agree-shame on that company! I'm sure those stresses just compound all that is already a worry and I'm sorry. I am though so glad to hear that Avarie is feeling a bit better and that the transplant can continue. You said Thursday? Right? Anything we can do? I can run anything you need up there!
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