Everything is actually going really well today. Avarie got sick a little this morning, but is actually feeling really well. She called me on the phone this evening and talked with me. She is so cute and her voice sounded so good. I had expected her to be sicker today because she was having a double dose of chemo today, but she is doing great. Her counts are continuing to go down and she will have her first blood transfusion tomorrow morning. I don't mean her first ever, just her first through this process. In the next few days we will have completely destroyed her bone marrow and your bone marrow is what makes your blood, so she will not be able to make her own blood, so she will be getting a lot of transfusions of both red blood cells and platelets until her new marrow starts to work.
Craig couldn't remember exactly what the Dr's said about her bacterial infection today, but there was something new with it so they were upping her antibiotic dose. He's going to put me on the phone with him tomorrow when the Dr's come around so I can hear and ask questions.
I am slowly feeling a little better, of course I thought I was feeling better the other day too and then got sicker. This is a miserable cold to get. Sawyer and I both have it. We keep waking up with our eyes glued shut in the mornings. Very annoying! I am sorry to several of his little cousins that he has now given it to while he was up staying with Grandma so we could check Avarie in for transplant. This is definitely not one of the easier colds to deal with. It is a miracle that Avarie didn't get it, and I mean truly a miracle. She was home all week, with a sister and brother coughing and stuffy noses. Then mom was at the hospital with her stuck in the one room trying desperately not to breath on her. It is truly a miracle that she was spared this. I don't know what would have happened if she would have gotten it. The cold definitely causes lung congestion and coughs, that could have been very bad for Avarie. She will not have any immune system for at least the next month and for several months after that she will have an extremely weak immune system. Something like this could have been really really bad for her. I am so grateful to our Father in Heaven for protecting her from this. It seems like something so simple to be grateful for, that your child didn't get a cold, but I am sooooooo grateful. I hope all those "o's" show how grateful. Its hard to show emotion in your words sometimes.
Thank you all for your thoughts and prayers, please keep them coming our road is definitely going to be a long one.
Wednesday, June 17, 2009
Day - 3
Posted by Jenell at 8:28 PM
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4 comments:
I love you Jenell and love your kids so much!!! It has been a complete joy to have some of them with us the last few days. We would love to have them around for many more!!! Our thoughts and prayers are with you and your family daily. Much love to you all.
Avarie is always in my prayers, we need to have a family fast before the transplant. Hudson enjoyed Sawyer around, but sorry for any bite marks he may have...we are working on that. Well I love ya and give Avarie a hug from her Auntie.XOXOX
I have it too and it's nasty. :(
It's truly a miracle that Avarie didn't get this one! Lots of love, prayers, and tissue!!!
I'm so glad Avarie did not get that cold. It would have been really, really bad for her. I, on the other hand, wish I had your cold and not mine. Mine is a severely sore throat for DAYS. I can handle coughing and stuffy, but to not be able to swallow without wincing is really the pits!
I am so sorry we missed your party, Avarie. It looks like it was a real BLAST!!! You sure have some great friends. We all miss you and are thinking of you daily. Connor never forgets to mention you in his little prayers. Hang in there and be tough! We love you!
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