Last night after the party I started to get sick. Our house has had a cold going around it over the last few weeks, but so far Avarie and I had stayed healthy. Last night though my eyes started to get yuky and red and I knew I was in for it. Today I have been doing better but I can feel a little heaviness in my chest and I know what that means. I had Craig do her meds and tried to stay away from her as much as possible, but she started to run a low grade fever right as we were loading the car and had a little case of the sniffles. We came anyway, because I knew they were going to want to see her either way. Its not like transplant is just something you can say oh well, we'll start next week. We have the donor to think about and he is on meds right now getting ready to be able to donate to her. I'm sure we're not the first people ever to have something come up where transplant has to be put on hold, but it is definitely a huge inconvience.
They are keeping us overnight. Her fever has gone down, but we were having a problem keeping her oxygen stats up. We did a chest x-ray trying to see if there was something there, we just couldn't get her stats up even with oxygen. A little note to her nurses at emanuel, they will appreciate this part. They all know how much Avarie loves oxygen, so everytime they would try to put the O2 mask on her she would get so upset she would start to hyperventilate making her stats go down even lower, so we stayed with the blow by O2, which just wasn't doing enough. The x-ray came back clear and the Dr's were just puzzled. She sounded completely clear, so why her stats were in the 80's even dipping a couple of times into the 70's they couldn't figure it out. I explained that that is just what Avarie does. She creates situations to keep all the medical staff on their toes and to try to make them smarter people. I told them if they called over to Emanuel the medical staff there would get a pretty good kick out of our current dilema, not that they would want to hear she was sick, just that it was Avarie being a difficult puzzle again.
Anyway, one of the Dr's finally put it together that she takes a drug called Dapsone. In very rare cases, less than 15% of people can have a strange reaction that can make their O2 stats appear low even when they're not. They ran a blood test to verify it and turns out he was right. So Avarie is off of Dapsone for now and off of o2.
Its been an crazy day, not sure what tomorrow will bring. Her temp is normal now and she doesn't seem to be having much of a runny nose, but if she has what my other kids have had and what I am getting, this is a bad cold. I thought the baby was over the worst of it, but I got a call from my sister tonight say "Sawyer is a mess". Great just what I want to hear that not only is my baby a mess and not with me, but that he is still sick. I don't want to hear that his cold has lasted this long, I need it to be a fast one for both Avarie and me. GRRRR!
I'll post tomorrow as soon as we know anything, at least her ANC is great which means she can fight infections great right now, hopefully her body and her blessing that she had this morning will do the trick.
Sunday, June 14, 2009
Transplant, or Not! At least not Yet!!!!
Posted by Jenell at 11:26 PM
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1 comments:
Sorry to worry you, Yes Sawyer has yucky eyes and nose but he is not miserable. He seemed all too happy playing in the dog poop!
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