Friday, March 20, 2009

Long Dr Appointments

Avarie had a Dr. appointment yesterday. I had expected a pretty quick check up, unfortunately I was wrong. Her appointment was at 11. They had a hard time getting her Buddy accessed, we usually do. I don't know why exactly, but they just almost always have a difficult time accessing it, it usually takes a little while of moving the needle around or having to repoke her. That is always traumatic for Avarie, she hates the Butterfly Needle. That is the name of the needle that they use to access her Buddy. After we finally got it accessed they drew her blood for her CBC(Complete Blood Count). When her counts came back, I was shocked how low some of them where. She ended up needing a red blood transfusion and a platelet transfusion. They were able to do the platelet transfusion in the day treatment center, it only takes about an hour from start to finish. It actually only takes about 30 minutes for the actual platelets, but Avarie has had allergic reactions to the platelets before so she has to be given Benadryl to counter any reaction she might have. Then we had to be transferred to the inpatient floor because it was going take 4 hours to administer the red blood cells. Normally it only takes about 3 hours for them, but because her counts were so low they had to do it over a longer period. We ended up not coming home until almost 11pm last night. It was a very long day.
Today Avarie has started running a low grade fever. We are close to the have to call range, but haven't quite hit it yet. We have our bags packed just in case, because her immune system is completely depleted and I know the fever will most likely just keep rising with no immune system to stop what ever it is affecting her. I have put the Dr's office on alert, now we're just waiting to see if we actually hit 101. Right now she is at 100.7. The Dr said he would be "happy" if she could make it until Monday, her next appointment time, but he sounded like he would be surprised if she did. I hadn't expected her counts to remain down so long with this chemo, but I was told yesterday to expect them to be down most of this next week also and most likely a couple more transfusions during that time. There are just so many different chemo's its hard to keep straight which ones do what to her. A few of them I am very familiar with and I know what to expect, but this one is one she has only had one other time and it was during the time when she was so sick and in the hospital for the 2 straight months running almost consistently fevers of 104-105. So I wasn't sure what to expect this time. I guess I know now, and hopefully we never have to have it again. She is not scheduled for this chemo again. It is a few different ones that she will get over the next few months before transplant. We have Vincristine next, I don't like vincristine, but oh well, its what is next.
I'll try to update soon and let you all know where we are and whats going on. I've been a little lazy on updating lately. Everything has just been going so well, that I just get busy living life and trying to enjoy some of it. I'll try to update more soon.

3 comments:

j and k said...

I'm sorry it was such a long appt. I bet you go home exhausted! You are such a trooper, though. You get her through so much! We'll keep praying that her fevers will subside! She is so strong!

The Hammond Holler! said...
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The Hammond Holler! said...

Hey this is Traci Hammond. I don't think we have ever properly met or even talked to each other but I saw you out in the hall last Sunday and I regret not saying hi. I read your posts as you put them on your blog and I want you to know what an inspiration you are. What an amazing mother you are to stay so strong for your little Avarie. You have gone through so much and when I have a bad day with my two little ones I just think of you and try to be a strong woman also.I Try to be the mother I know you are to Avarie and the rest of your cute little family. Thank's for sharing this experience of your life with us. We remember Avarie in our prayers often and also for you to stay strong. Hope to see you again at church I promise I'll say hi next time... :)