Things have been going really well since coming home Sunday Evening. Yesterday we took Avarie for a family walk, which she really enjoyed as long as Carter wasn't pushing her. It is so sad because he tries so hard, he pushes her so slow trying to be so careful, but she is just does not like him to do things for her. It breaks my heart sometimes because he tries so hard. I have tried explaining to her how much he loves her and how it hurts his heart when she acts like that to him, but she is 4 and just doesn't quite get it. Sometimes she will be so sweet with him, like she likes him to hold her hand during some of her wound dressing changes, which he loves. He is such a tender hearted child, he loves to cuddle and he just wants to do that with her. We are going to keep working on her. Part of me wants to give her a little control in her life to say who she cuddles with and lets do things for her and I try to most of the time, but I worry about Carter and that he is feeling left out. This is a hard time on everyone, I just don't want to see any of my children suffer and I don't think Avarie letting Carter push her wheelchair or cuddle with her will make her suffer, but it does make Carter suffer that she rejects him like that. So yes after writing this I am even more determined to fix this. Thanks for listening. My mind works best when I can vent and talk about things.
Other good things that happened yesterday, since Avarie was in such a good mood, and I mean she was in a really good mood we decided to take her to Craig's parents house to visit. She has not been there since before her diagnosis which was 5 months ago. Craigs Brother, Daren, and his family came over and so did his sister Rachelle with two of Avarie's cousins and Lucy, Avarie's cousins and one of her best friends in the whole world where there. Lucy lives there. They all played together in Lucy's room for hours. Avarie was laughing and playing and just seemed like herself again. We stayed late because we just couldn't bare to take her away from all of her fun. It was so wonderful for her to feel at least a little normal for an evening and to get to reconnect with her cousins again. It has been so long since she has really been able to play with her cousins. She has had a couple of occasions where she has played with some of them on my side of the family, but they have been very few and far between. She was even pushing herself to move more last night. The better see feels the more she pushes herself to try to move. We just need to try to keep her out of the hospital as much as possible. When she is home she is a much happier child and does so much better. I know we are due back for chemo this next week some time, but hopefully it will be a short stay this time. I'm not sure how long of a stay this next one is. We have an appointment today at 1. I should be able to get a better idea of when and what is coming up next.
Tuesday, March 3, 2009
(: (: Having Good Days :) :)
Posted by Jenell at 11:04 AM
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2 comments:
I can't even explain how awesome it was to see Avarie like that...it was just...awesome! It was just good ol' Avarie! Hopefully she feels good enough for you guys to come out our way later this week!
It's great to see her smiling and happy! I posted below, but I'm not sure you'll see it. Can you email me, so I have your email address? Mine is kimujifusa@yahoo.com and I found a fundraiser to help you guys. I hope it helps! If you get a minute, email me and I'll get your permission to go ahead with it.
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