Monday, March 30, 2009

Back Pokes, Biopsies, Chemo OH MY!

The title is suppose to be read to the Wizard of Oz's song, just incase it sounded funny to anyone.
I just wanted to drop a quick note that we are headed in today for a Bone Marrow Biopsy and a Lumbar Puncture(Spinal Tap). Avarie has these every few weeks or so. Its actually been over a month since our last one, I think that's the longest we've gone so far. They always like to recheck and make sure that there is still no trace of Leukemia in her, make sure she hasn't relapsed. Today is one of those days and she will also be getting an injection of chemo into her spinal column. Its called Vincristine and it is one of my least favorites. It makes her nerves feel weird. I think this drug is part of the reason that she stopped walked, it was the first chemo given to her during her failed Induction. Induction is what they call the first month of chemo when they want you to hit Remission, which Avarie didn't, but she did stop walking during that time. I think the Vincristine messed with her nerves making touch of every kind feel weird to her. She was already in a lot of bone pain since the cancer was no under control and still in her bones, and then we added all these weird feeling nerves to it. I think the combination just did her in and then her lack of nutrition and immobility did her muscles in and made them atrophy. I think it was the perfect storm, it just all happened just so and boom she now hasn't walked or stood in 6 months. Since she has been getting stronger over the last few months we are planning on really pushing ahead with getting her walking and standing over the next two months before transplant. She needs to be stronger for transplant, the Dr's are concerned that she is so weak. I can't say that I'm not concerned about that also. Transplant will make her even weaker then she is now, so it would be better to start at a better spot and try to maintain mobility rather then let her dwindle down further then where she is now. If we don't get her walking before transplant she will not be ready to start trying to learn to rewalk until maybe December, by then it will have been over a year since she walked, I don't like that idea. That is too long for her to have not used those muscles. So walking is of huge importance right now and I think we are all on board with really starting to push it now. I think she is ready.
We will be home later today, it is an in and out procedure and then we are back in for a 2 hour chemo tomorrow and then we are admitted on Wednesday and home on Friday if all goes as planned.

3 comments:

Faye said...

god bless you all.we are praying for all of you.i know you all are so tired.we will be checking for updates! blessings, faye

Cecelia---Sis---Mom said...

I just found your blog and I am praying for you and your family.

I will be checking back in and if I can do anything, even if it is just a note please let me know.

cecelia89@yahoo.com

Cece

Littleman's mama said...

You don't me, I found your blog on face book. My 2 year old was diagnosed with ALL a year ago. We are praying for Avarie and your family. It is a tough thing to handle. I know how hard and long the days in the hospital can be, even a day for just chemo or LP'S can be long and emotionally hard. I am a stranger but if you ever need anything don't hesitate to ask. Take Care and sending lots of healthy thoughts for Avarie.

The Ernst Family Scott, Christina and Ryan