Avarie is having a hard day today. She was up most of the night with nightmares. She doesn't remember what the nightmares are she just wakes up crying and doing that short little sharp breath that comes after the crying when she is trying to calm down. It has made for a very long and emotional day for her, which makes for a long and tiring day for the rest of us. I remember the Dr telling us a little while ago that it is actually a good thing that Avarie is having nightmares. It means that her subconscious is starting to deal with everything that has happened to her, its letting the bad thoughts out. It means that she is feeling safe enough to let herself start to heal mentally. She is going to have a lot of healing to do, but it is nice to know that she is feeling safe enough to let the scary stuff out.
She was really sad that she couldn't go to church today. Once she realized that she wasn't going it started a huge melt down that required some Adevan to calm her down. She gets like this when she is not feeling well or sometimes when her counts drop really low. Since we just finished chemo this last week I am betting its that her counts are really low. We have an appointment tomorrow to get checked out. If she needs any transfusions it will make for a long day, but oh well, you start to expect that after a while.
She continues to get stronger. She got a pair of shoes yesterday at Fred Meyers. She picked out purple sparkly crocs. She has not worn a pair of shoes since September of this last year and even then it was only occasionally. She hasn't really worn shoes since the beginning of July when all of her problems started. She's not ready to start walking yet, but she continues to get stronger, hopefully in the next couple of weeks that will be something she can start trying. Well I guess we've got to get her to bare a little more weight on them first, I guess I might be getting ahead of myself. It is just exciting to see her starting to do better. She hasn't walked now in almost 6 months and for the 2 1/2 months before that she only barely walked. She hasn't been able to run around and play normally in almost 9 months. That's a long time for a small child. I just want her to be able to run around and play, but we're getting there. I can feel it, she will be doing it someday soon.
Does anyone know how we get a handicap permit for our car. There have been several times when we have been transporting Avarie that it sure would be nice to be able to get her out easier in one of the handicap parking spaces. I'm just not quite sure how to get one. I plan on asking the Dr's tomorrow if they know, but I thought maybe someone out there might also know just encase they don't.
Sunday, March 15, 2009
Nightmares make for LONG DAYS!
Posted by Jenell at 1:38 PM
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4 comments:
You ask your doctor for the handicap permit and he will get the paper work and they will sign it and you take it to the DMV and they will get you a permit.
Thanks!
JUST KNOW YOU ALL ARE IN OUR HEART AND PRAYERS.I HOPE TOMORROW WILL BE A LITTLE BETTER.MAYBE YOU ALL CAN REST A LITTLE.SENDING LOTS OF HUGS! FAYE
It was so great to see Avarie ride the trike!! Thanks for posting that!
I was going to say the same thing that Morgan said about the permit, but she beat me to it! (smile)! Love you Avarie!!!!! Keep up the good work!! I can't WAIT to see you in your new purple crocs!!When you are wearing them, And walking in them, I'll take you to the store and buy you an outfit to wear with them. Something with sparklies on it!!
Oh and just an FYI, Jenell, it's Ativan. Giggle!
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