Avarie was able to come home on Wednesday, it just took me a couple of days to sit down and update, sorry. Things have been going really well. Avarie is continuing to get stronger. She was able to ride a tricycle around the hospital during therapy. She was enjoying it so much that they let her keep it for the evening and she was riding it late at night through the halls of the hospital. She had taken a 3 hour nap and didn't wake up until 8pm, that was a long night. When we're at the hospital our schedules just get really messed up. She had a lot of fun with the bike though. I think we're going to try to find one at a garage sale for her, it would be good exercise for her to try to do here at home too. The bike she had this last summer is just not very stable.
My sister said I should blog about this last little piece of info, she found it really funny. Avarie is not eating at all(that's not the part she finds funny), so she is almost exclusively being fed right now through her g-tube. It is a tube that goes into her stomach, it was surgically put in several months back. We hook her up to a machine and feed her through it. We normally always use this particular formula that is Unflavored, according to the package. When we were at the hospital this last time they brought in the feeds but they didn't look right to me. Normally her feeds are bright white looking, but this was discolored. I made them stop and figure out what was different, because they definitely were not the right feeds. Turns out the formula comes in Chocolate and that is why it looked weird. Well the chocolate feeds smell very chocolaty. When you would walk in her room all you can smell is chocolate. When she threw it up one time, we decided to not use chocolate feeds with her, it didn't smell well to throw that up. So she has not had chocolate feeds since Monday night or early Tuesday morning, but Avarie still today smells like chocolate. I even washed her down really good last night and yet she still smells like chocolate today. My sister was here yesterday and I told her about it and so she bent down and smelled Avarie and started laughing because Avarie totally smelled like chocolate to her too, it wasn't just me and my weird mommy senses. I'm hoping the smell will eventually wear off. I guess she could smell like something worse and believe me at times she has, but the chocolate smell is starting to bother me. I am across the room from her right now and I swear I can smell it even now.
Friday, March 13, 2009
Tricycle's and Chocolate
Posted by Jenell at 12:57 PM
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4 comments:
I am inspired by your family, and the sweet spirit of your daughter Avarie. Our thoughts and prayers are with you.
My 7 year old could take some riding lessons from Avarie! She is one good biker.
(My sister is Kim Ujifusa)
It's so wonderful to see you smiling again Avarie!!! Keep up the great work...not even I can ride a bike as good as you :)
Love, Jen
Wow! Look out Lance Armstrong...Avarie is moving in! She looks great! That is some ambition!
I think she smelled more like Graham crackers, but maybe that's because I like to smother mine with chocolate frosting :-)! You smelled yummy Avarie...:-)
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