Avarie the Superhero

Avarie had her special test today. Although what I didn't realize yesterday was that the chemical that they were giving her today to make her white blood cells light up in the picture is RADIOACTIVE. Yes Avarie is radioactive today. The nurse that she had today is pregnant with twins and so she had to trade out with another nurse. She couldn't be around Avarie after she became radioactive. Sorry I have to keep saying that word because it is just funny to me to think that my daughter is radioactive. I guess it shouldn't be funny but it kind of makes me feel like I'm talking about a superhero or something and well she is, Avarie is a Superhero. I think I want to come up with a superhero name for her, but I need suggestions. So everyone put your minds to work and help me come up with a superhero name that will fit her "Glowing Personality" and everything she has had to overcome.
The testing went well, they took the pictures an hour after putting the substance in her and then again 4 hours after. The second testing took over 2 hours and she was sedated for that. She always has a very hard time coming out of sedation when she has been under for that long. The short sedation's are easy on her, but she is incredibly emotional when she is coming out of the longer ones. They are going to test her again tomorrow and then we should have some results.
She is going to undergo one other test tomorrow. They are going to inject contrast into her stomach and let it travel through her bowels and see how it travels while they take several pictures to see the movement of it. She continues to throw up even though she is on so little food, she even gets sick when she is off of all feeds for several days. She just keeps getting sick for no reason, so we are looking to see if there is a blockage causing it.
She also started a new drug today called Neurontin. They are giving this to her to help with her overly sensitive nerves. They are thinking that part of the reason she is in more pain over the last week is that her nerves have become overly sensitive. She cries about pain with just the simplest of touches. It will take several days to see if it works, but we used it for Craig about a year or more ago for his back for almost the same reason and it did work well so we are hopeful. They are also wanting to change her to a different pain med, she has been on Fentanyl for this entire time and they feel it is time to try a different combination of something else. It will probably end up being morphine. She never did as well on morphine before, Fentanyl is stronger, it is the strongest, morphine is a step down, but we need to make some changes to try to make some improvements.
I feel better today about them wanting to remove all of her lines. I am not happy about it happening but I have a much better understanding of why they need to do it. It is a long explanation and full of a lot of medical jargon, so I will skip the explanation. It is just something that they need to do. Although the surgeons are not happy about it, the Dr's are still trying to get them on board but we have had 3 infectious disease control Dr's come in and consult and they all agree and 3 of our Oncologists/Hematologists Dr's, they are all on board on this. We just have to get the surgeons on board. They are thinking that it will probably happen on Friday, possibly Thursday, but most likely Friday.