HOME! (maybe)

So I am trying not to get my hope up, but I am failing miserably. My hopes are way UP! They are planning to send us home in a couple of days as long as todays GI tests look ok. She has stopped having fevers and is acting more herself. All of her wounds on her body are healing and her numbers look great. They really want to get her home for Christmas. We still have the nutrition thing to get stabalized out, but we are working on it. She continues to throw up once or twice a day, with out reason. At least not any reason that we can figure out. That is why they are performing some GI tests today. GI is Gastro Intestinal, or something like that, they are the stomach and bowel guys. They gave Avarie some contrast this morning and have been doing x-rays all day watching it move through her system to see how its moving. We are looking to see if there might be a blockage or something else causing her to throw up. Tomorrow she is also have an endoscopy(sp) where they take a scope and look at her esophogus and stomach. (I am sorry for any misspelled words). They are discussing putting a "Button" in her instead of her NG tube. A "Button" is where they place a tube directly into her stomach and it comes out through her stomach. It is a longer term solution for her nutrition problems. The tube through her nose is not a good long term solution and Avarie is going to have nutrition problems for awhile. We can't get her to eat anything. She has not taken anything by mouth for maybe 6 weeks or more. She drinks a little, but does not eat at all, she tries sometimes, but she just spits it out and says she can't. We've had speech therapy in to evaluate and they can not find any reason for her to not be swallowing, they think it is a combination of a lot of things. Basicly it is just going to take time and therapy to over come that. So anyway, the Button would be a better solution for nutrition issues, but I hate to put her through one more surgery, but it may be unavoidable and her counts are really good right now so if they are going to do it they want to do it ASAP so her body has time to heal from it while her counts are still good. She is scheduled for her next round of chemo this next week. They are going to hold off until the day after Christmas. It will require a 2 day stay and then as long as there are no complications she can go home. She then has to stay again the following week for 2 more days. This round of chemo just works that way.
On one other note. We got the HLA typing back. That was the blood test to see if our kids were a match for Avarie and none of them were. I am honestly quite shocked by that, but they are going to still look for an unrelated donor in their donor registry. I don't know if there is much of a chance of finding an unrelated donor, but the Dr seems hopeful. Any of our relatives have as much of a chance of being a match as anyone else across the world does. It is a long shot to find someone, but they do find matches. We are looking into doing a bonemarrow drive, but its not like the Red Cross Drives. The bone marrow registry charges about $40 dollars to be on the registry.