Just realized we have been in the hospital for over 3 weeks now.

Sorry we haven't updated today. I came home from the hospital and have been trying to enjoy my kids and honestly I am exhausted, but I am posting at midnight because my mind is racing and I can't sleep. Funny that I come home to get a "good" nights sleep and can't sleep.
The last two days Avarie has been incredibly emotional. We have had to give her Adavan often to try to keep her calmed down. Adavan is the drug they give people when they are having panic or anxiety attacks, it is a relaxer drug. She has just been through so much and I think now that her pain is beginning to be under control a little more all of her emotions are spilling out.
She asks frequently to go home now, which is wonderful that she is making that connection that there is a home to go home to. It is hard to try to tell her that she can't go home right now, but that if she keeps working hard she will get to go home soon.
We don't have any word yet on what type of infection or infections are invading her body. The biopsies take a little longer to grow the cultures. We're hoping to have some answers tomorrow but it may not be until Monday. They started her on a very heavy duty anti-fungal medicine last night. This particular anti-fungal medicine is kind of a scary drug that is why they held off giving it to her. But they have a suspicion about what may be wrong and if it is correct then it is important to start treating her right away. They think its possible she may have a fungal infection called Candida. Basically Candida is a thrush or yeast infection, normally no big deal, but when someone is immune compromised everything becomes a big deal. Candida can become a systemic infection and invade the whole body causing organ damage to ALL of your vital organs. She did have a very bad thrush infection about 2 weeks ago, right as they began wiping out her immune system. She had been on an anti-fungal, and that drug is a very strong one, but sometimes things can be immune to certain drugs, so they have started her on this other drug. It required her to have a potassium transfusion last night and to be hooked up to heart monitors all night. They only do a 1 hour drip of the medicine as a trial at first to see how she respond, here are a lot of possible side effects. She did great on it though and so today she got the full dose, it takes 4 hours to administer the drug. So far so good.
On a really good note, her ANC was up to .20 or 200 today. That means her immune system is continuing to come back. She still has a really long way to go. Anything under .5 or 500 they will usually hospitalize the kids for their own protection, so she is still very low, but it is a start. We are hoping in the next several days to see some good jumps in her numbers.