The News is In

So we got the news that we thought we would get and its not great. Her leukemia has gotten worse since her last biopsy. Her leukemia rates increased from 13% to 30%. That was what they had felt would happen based on her blood results and they were right. They are hoping to start her new chemo tomorrow. She is now in the Extremely High Risk category for leukemia. This type of chemo means that she will be in the hospital for 6 days worth of treatment. So if they start tomorrow we will be here until at least next Wednesday. We won't know completely how she responds to that until day 28. This round of chemo is a 28 day schedule vs. the 29 day schedule that she just completed.
The Dr. that came and explained a little of what to expect thinks that radiation to the head is part of this treatment plan, but she did not have the exact treatment plan in front of her. There are so many different treatment plans based on lots of different things. The other Oncologist will be coming in tomorrow to sit down and really explain everything to us.
We have started her on some Fentanyl and that seems to be helping her pain, I think we still need to increase it a little more, but after the scare we had last night with her blood pressures I think we all want to be careful. Oh, I don't think I explained what happened last night. It was a really long night. Her blood pressures were really low and the came in around 2am and were talking about moving her over to the ICU. They then pumped her with a whole bunch of fluids at a really fast pace to see if it would increase the volume in her blood, which would hopefully help her blood pressure, that worked and so she didn't have to go to the ICU, but it happened again around 4am and they were not happy about it, but since she responded to the fluids so well they didn't make her go to the ICU. They also were growing more concerned about an infection that has set in in an old bone marrow sight from 2 weeks ago. It has been slowly getting worse and so they took a culture of it last night. The results came back about an hour ago, it is e-coli. Now before you all get too worried, ecoli is something that lives with in us and is actually easy to treat. Its the animal ecoli that you can eat that is the scary one. So they have started an antibiotic for it and it will hopefully start looking better tomorrow. She also has a few other weird soars popping up that we don't yet know what they are. They seem pretty confident that they will be able to treat them all with antibiotics, but she is very soar and uncomfortable from them.
Over all she is incredibly soar everywhere. Between the pain in her bones, the infections around her body and the gas on her tummy from the feeds, she is just pretty miserable. Oh yeah she also has thrush, pretty bad too, but they have meds to treat that too. I am grateful that we are here that we can have all of these things treated.
Emotionally we are all holding up pretty well. I think the fact that the Dr's have been preparing us for this news has helped. It gave us time to digest it and let it sink in before we actually knew anything, so that when the results came it was more a feeling of ok thats what we were expecting now what, and not an oh my goodness how did this happen.
Craig is up here tonight with me, I was suppose to go home tonight, but after the scary night last night and the new news tonight I just couldn't go home. So my mother in law is at home with our kids tonight. My plan is to go home tomorrow, I am sure missing my other kids. Its just this constant guilt thing. I feel so needed up here with Avarie and yet I know my other kids need me too. I am just going to make myself go home tomorrow. I need to see my other babies too and they need to see me.